This page is provided for those looking for CF related links. There are a great many CF pages out there on the Net now; this is not meant to be a comprehensive compilation of all of them, just a few that have been culled together for our site. Most of these pages have links to a great many more; so if you don't find what you were looking for at one, you are sure to find it by trying another link. Here is a Yahoo search link that will lead you to still more. There is no shortage of information on the web. Happy searching!


Foundations and Other Organizations

Brave Kids site
A site for kids and their families that are dealing with chronic illnesses (Not CF-specific)
http://www.bravekids.org/

Pediatric Database
A clinical description of the disease and its treatment
http://www.icondata.com/health/pedbase/files/CYSTICFI.HTM

Medrise's page
A very good site for all kinds of CF stuff
http://www.cysticfibrosis.com

National Cystic Fibrosis Awareness Committee
Site that promotes CF awareness.
http://www.ncfac.org

International Association of Cystic Fibrosis Adults
Good newsletters, info on CF Adult issues.
http://www.iacfa.org

The Boomer Esiason Foundation
Basic CF info, fundraising events, etc.
http://www.esiason.org

Cystic Fibrosis Foundation
Good resources, on-line store, on-line pharmacy info
http://www.cff.org

HealthlinkUSA
Kitchen sink of illness-related links. Interesting mix of links for CF
http://www.healthlinkusa.com

The Cystic Fibrosis Center at Stanford
News, info and links. Good site...
http://cfcenter.stanford.edu

The Web of Care's Cystic Fibrosis Community
Support, products and information for caregivers
http://www.webofcare.com/cysticfibrosis.html


Individuals and Groups

CF message board
Great board for discussing anything, CF-related or not. Not a 'chat' board but a message board.
http://www.javaboards.com/cfboard

Risa Gans' site
Info about transplants, Transplant Sharing Exchange
http://members.boardhost.com/Transbuddies/

Sandy Cochran's CF information site
http://www.geocities.com/HotSprings/Villa/9559

Jeff Wine's page of CF links
Last updated 5/98
http://www-psych.stanford.edu/~wine/CF-Links.html

Canadian Cystic Fibrosis Foundation
http://www.cysticfibrosis.ca/

CF-Web at MIT
Lots-o-links
http://cf-web.mit.edu

Rich Lukas' site
Very comprehensive list of online CF resources
http://vmsb.csd.mu.edu/~5418lukasr/cystic.html

CYSTIC-L internet mailing list home page
Cystic-L is an email-based discussion group. This is their home page.
Good photo section! A perusal through this area will show you the faces of CF. Highly worth while...
http://Cystic-L.org

Scott Compton's page of CF Links
http://www.asbestos.org/scott/CysticFibrosis

Norma Kennedy's page of CF Links
Good resources and photos. Check out the photos of Brian Rydall's lung transplant scars. Wow!
http://www3.nbnet.nb.ca/normap/CF.htm


Sites by people with CF

Bob Wright's page
The life and times of a person with CF
BobAndGail.com

Michelle Compton's website
Poetry (by people with CF) and other beautiful things
http://www.dragonflypond.com

Ami Leigh's page
Home of the Insanely-Fit, Fry Loving Princess
AmiLeigh.homepage.com


International

Jose Pulido (en español)
How do you say 'cystic fibrosis' in spanish? Find out here!
http://www.geocities.com/HotSprings/2677/

The European Cystic Fibrosis Society
Euro-specific CF stuff. Go here before you go there...
http://www.uwcm.ac.uk/uwcm/eqgcf

Canadian Cystic Fibrosis Foundation
Good site. Lots of on-line info. Canadian CF clinic site addresses, research info, email discussion
http://www.ccff.ca

Cystic Fibrosis Victoria (Australia)
Cool. Lots of services, help for people in Victoria. Good organization to emulate.
http://www.cysticfibrosisvic.org.au


Newsletters

NEWSLETTER LIST www.cysticfibrosis.com has a GREAT list of newsletters at this address: www.cysticfibrosis.com/newsletters.htm.

NETWORK A national (USA), quarterly newsletter for adults with CF.
You may subscribe via e-mail by contacting NETWORK's editor, Larry Culp at LDCulp@voicenet.com, or by writing to the address below. If you or your child(ren) have CF, please provide date of birth. Thank you.
CF Network, Inc, P.O. Box 3459 Littleton, CO 80161-3459

INFORMER 16 pages, bi-monthly. Nicely home-spun. Informational but also informal. Pictures, mail-buddies, birthdays, etc.. Contact Bev Donelson at bevd@hhcs.com.

CF ROUNDTABLE A newsletter put out by USACFA (US Adult CF Association). To subscribe email CFRoundtable@cysticfibrosis.com or call (503)669-3561.



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